Last week I found out that my friends Dan and Erica received news that their five month old daughter Ella Lanay is suffering from a disease called Spinal Muscular Atrophy (SMA) Unfortunately Ella's disease is terminal. As shocking and devastating as this is for the family, Dan and Erica are sharing Ella's story to raise awareness of SMA and asking for prayers and support from friends and family.
I met Erica when I was a sophomore in high-school. I was shy and awkward and she was loud and beautiful. Most of our story's involve road trip debacles, board game nights, 6am kickboxing class (we were crazy) .....New Years party's and of course the time I hit on her husband....well they weren't technically married yet and she loved me enough not to break my arms...and I did get to be in the wedding...so all was forgiven (lol).
Over the years we have kept in touch periodically and during that time I've seen her face too many deaths and heartbreak mingled with much joy and success. And through it all she has always been strong.
Erica and I the night before her big day....
My heart breaks for Erica, Dan and their family. But even with the grief I know is happening, the Hunts have decided to live life with Ella and share in the happiness each day with her brings.
The wisdom and daily postings on Ella's Facebook page, have inspired me to stop complaining about my house, my car, my job and focus on whats important in life....my family, my children and my friends.
Im sharing this with you all today because I want to be a part of sharing Ella's story and offering everyone that reads TBR's a chance to help, by sending your prayers or positive thoughts, or by spreading awareness of SMA. And the most precious, to have a memory of Ella forever.
Ella's Legacy Bags
DH Dream Designs is developing a collection of bags called Ella's Legacy! In an effort to raise funds for Ella and her family a line of bags using Ella's little dresses are being created. These little dresses will be used on the front of the bags to create an outside pocket. A picture of Ella in her dress will be included on the inside pocket of each Ella Legacy Bag.
What a treasure this will be....
You can learn more, see the what the bags will look like, or get the information to order your bag at the following link: http://ellaslegacycollection.blogspot.com/
Follow Ella's story at Ella Lanay Hunt